Dr. Henry Lynch identified multiple “cancer families.” These families primarily had multiple cancers of the colon, uterus, and ovaries, especially in young people. With further research, he discovered a genetic link, with 5 specific genes as the cause. For these efforts, Lynch syndrome was named after him.

It is estimated that Lynch Syndrome affects 1 in 279 people or almost 1.2 million individuals in the United States. Unfortunately, 95% of those affected DO NOT KNOW they have it.

If multiple family members have cancer with one person younger than 50, talk to your health care provider.

Your physician may order testing directly or work with a genetic counselor. Fortunately, the cost of testing has decreased from $6,000 to under $500 over the past 5 years.

If Lynch Syndrome is the cause of a family cancer, there is a 50% chance of passing the gene to children. Thus, this knowledge is important for the entire family.

Since men with Lynch Syndrome have up to a 74% lifetime risk of colon cancer, with the average age of just 44 years old, a majority of cancers would be missed if the routine colon cancer screening guidelines are followed.

Women with Lynch Syndrome have up to a 52% lifetime risk of colon cancer, up to a 71% lifetime risk of uterine cancer, and a 12% lifetime risk of ovarian cancer. Some Lynch syndrome genes may increase the risk of breast cancer.

With a majority of all three of these cancers developing before the age of 50, without awareness and action, Lynch Syndrome is a silent killer.

People with Lynch Syndrome have an increased risk of multiple cancers. Knowing you have it allows your physician to monitor for cancers and catch them at their earliest stage.

Colon and Rectal Cancer - Start screening colonoscopies in your 20s and get screened every 1-2 years instead of 5-10 years.

Uterine and Ovarian Cancers - See your health care provider every year for a checkup. Do not ignore any symptoms, such as irregular periods or pain. Preventative surgery to remove the uterus and ovaries may also be recommended.

Lynch Syndrome may cause other types of cancers. A good relationship with a physician that is familiar with Lynch Syndrome is important. Seeing your physician early for symptoms and having a yearly physical with labs can help prevent or catch cancers early.